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Tag: Disability

Deceleration: Disability Rights Organizers in Texas Get Ready to Fight

Posted in Austin, Deceleration, and Journalism

For the past 40 years, ADAPT of Texas has advocated for the world to be more accessible, so that more disabled people can live in their communities, rather than in institutions. The progress this community has made in that timespan, which includes the 1990 passage of the Americans with Disabilities Act, is remarkable. At 78 years old, community organizer Bob Kafka has been there to witness those changes. Like many in the rabble-rousing organization, he’s not afraid to throw his body, and his wheelchair, in the way of the machinery of injustice; he was present at key moments of nonviolent direct action like the Capitol Crawl and the subsequent occupation of the Capitol rotunda which forced Congress to pass the ADA.

Today, the disability rights community is looking at the incoming administration with trepidation, preparing to fight attempts to dismantle their hardfought gains. In a state where the governor is himself disabled yet often seems actively hostile to their cause, ADAPT organizers are prepared to ramp up pressure on Texas lawmakers to improve the state’s treatment of disabled people and their caregivers.

Texas Observer: Long COVID Sufferers Demand to Be Heard

Posted in Austin, Journalism, and The Texas Observer

Most people survive the Coronavirus with their kidneys intact. But not 34-year-old Austin resident Vanessa Ramos. 

An experienced community organizer with nonprofits like the Sierra Club, Ramos was healthy and active before she got infected. Then she caught the COVID-19 virus in December 2021, and symptoms lingered through the new year despite her efforts to focus on healing and recovery. 

“I was trying to prioritize my physical health because I couldn’t lift things; I couldn’t open things,” Ramos recalled. “I didn’t understand why I was getting weaker.”

Queer As Folk Reboot Features Groundbreaking Disabled Orgy

Posted in Journalism

Everything is ready for the orgy. The snacks  and drinks are prepared, the disco ball is hanging, and there are  mechanical lifts to help people in and out of their wheelchairs. As a  few guests mingle and a go-go dancer gyrates, Marvin (played by Eric  Graise) rolls onto the stage in his wheelchair to act as emcee. With the  help of a sign-language interpreter, he kicks things off by announcing,  “I know you’re all dying to tear each other’s clothes off, or to have  your attendants take them off for you.” This is no ordinary orgy; it’s  “#F*CK Disabled People,” the titular orgy from Episode 4 of Queer as Folk.

Believe Disabled People: When People Don’t Believe You’re Sick

Posted in Creative Commons, and Journalism

Believe disabled people.

Believe disabled people, whether or not we look disabled.

If you can absorb that statement, you can probably skip this post. However, read on for some more nuance and examples from my life.

Using A Cane With An Invisible Disability

Posted in Creative Commons, and Life

I thought I’d write for a moment about what it means to use a cane as a person with an invisible disability (fibromyalgia).

Invisible disabilities are life-altering health conditions which are nonetheless not always visible to a normal observer. Even a trained medical professional might miss them under casual observation. Fibromyalgia is a debilitating, and poorly understood condition. It combines chronic pain with other symptoms like sleep disturbance and severe fatigue.

I don’t use a cane every day, which can contribute to confusion from people who don’t understand how disabilities can work. I might seem “able bodied” one day, but the next (or even later the same day) be hobbling around in pain.

Quoted In Bitch: Cannabis, Chronic Illness & Unsolicited Medical Advice

Posted in Journalism, and Ministry of Hemp

I was quoted by journalist s.e. smith in a recent article in Bitch on cannabis and unsolicited advice for the disabled and chronically ill.

As editor of Ministry of Hemp, obviously I’m a believer in the benefits of hemp.  But I’m also not a fan of giving sick and disabled people unsolicited medical advice. And even though cannabis in several forms is helpful to my disability (fibromyalgia), it’s not a cure.

I’ve tried it, I know how it helps, and I don’t need other folks telling me what to do unless I ask.